I’m going back to the hospital for scans today, and then will see my doctor tomorrow. These visits come up every three weeks (scans every 6), since I’m part of a clinical trial. Mostly I don’t mind the frequent visits, but traveling 3.5 hours each way so often gets kind of old. It’s hard to say exactly how I feel when it comes to scan weeks. It makes me nervous, but I also know there is nothing I can do about the results. It is what it is.
Treatment is going well – so I’m still on the drug that I started at the end of January, Lorlatinib. Funny story – I took Crizotinib half-way through a backcountry marathon a while back and thought I was going to lose the contents of my stomach – it was terrible. I took my Lorlatinib pill 8 miles into 14 and felt perfectly fine. Go figure…drugs and science are crazy!
I feel good, though. I pre-ran the Aspen Backcountry Half-marathon a few weeks ago, rode my mountain bike for 34 miles and went for a 15-mile hike up to a high mountain pass in Glacier National Park. I continue to run and even got signed-up for the Minneapolis Marathon in October. Really, things are pretty good!